Upstate NY Chapter of HDSA

Location

P.O. Box 25237, Rochester, NY 14625

Phone

585 341 7400

Email

<ajladonna AT yahoo DOT com> Alan LaDonna

Website

HDSA Upstate NY Chapter

National Website

The Upstate NY Chapter of HDSA (Huntington's Disease Society of America) is a nonprofit organization that is dedicated to:

• Eradicating Huntington's Disease (HD) through research;
  

• Assisting people and families affected by HD; and
  

• Educating the public and health care professionals about the disease ¹

May 1 2010 - organization sponsors "5K run/walk in honor of Rochester police Officer Bill Lawler, who has the genetic code for Huntington's disease. Lawler's friends at Matthew's East End Grill helped organize a race to support research. John Vito from the former O'Bagelo's on State Street donated breakfast food for the morning race; the Locust Club, the police officers union of which Lawler is a member, donated $1,000; race t-shirts were donated at "less than cost" rates by John Fiorica, a fellow police officer and owner of Crime Dog Gear, an apparel printing company."
According to the information from a news article partially quoted above from the April 20th, 2010 D&C online, and www.huntingtons5k.com.

Page originally created as Huntington's Disease Society Upstate NY.

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